Patient & Family Engagement
Listed here is a selection of the most current and relevant research on engaging patients and families to increase patient safety.
• Institute for Healthcare Improvement. Person- and family-centered care.
• AHRQ, PSNet. Patient safety primer: The role of the patient in safety.
• AHRQ. PSNet. Perspective on safety: Patient engagement and patient safety.
• World Health Organization. Patient involvement.
ARTICLES AND REPORTS
The association of hospital quality ratings with adverse events. (2014). Full text
Examines how patient-reported quality is related to adverse events.
Can patient involvement improve patient safety? A cluster randomised control trial of the Patient Reporting and Action for a Safe Environment (PRASE) intervention. (2017). Full Text
Evaluates the efficacy of the Patient Reporting and Action for a Safe Environment intervention.
Clinical workflow observations to identify opportunities for nurse, physicians and patients to share a patient-centered plan of care. (2014). Full Text
Describes the value and feasibility of integrating nurse and physician plans of care, into a shared plan of care.
Evaluating the PRASE patient safety intervention - a multi-centre, cluster trial with a qualitative process evaluation: study protocol for a randomised controlled trial. (2014). Full Text
Development of the PRASE (Patient Reporting and Action for a Safe Environment) intervention, which gains patient feedback about quality and safety on hospital wards.
Involving patients in patient safety programmes: A scoping review and consensus procedure by the LINNEAUS collaboration on patient safety in primary care. (2015). Full Text
A review of interventions focussing on patient involvement for patient safety.
Optimizing patient involvement in quality improvement. (2013). Full Text
Identifies specific strategies to ensure effective patient involvement.
Patient participation in medication safety during an acute care admission. (2015). Full Text
This study explores patient participation in medication management during a hospital admission for a cardiac surgical intervention of patients with cardiovascular disease.
Patient portals and patient engagement: A state of the science review. (2015). Full Text
Demonstrates that patients' interest and ability to use patient portals is strongly influenced by personal factors such age, ethnicity, education level, health literacy, health status, and role as a caregiver.
Promoting engagement by patients and families to reduce adverse events in acute care settings: a systematic review. (2014). Full Text
Examines interventions that encourage patient and family engagement and how they have been implemented.
The role of patients and their relatives in 'speaking up' about their own safety - a qualitative study of acute illness. (2015). Full Text
This study examined the experiences and views of patients and their relatives to determine the potential for involvement in promoting their own safety.
What are the key ingredients for effective public involvement in health care improvement and policy decisions? A randomized trial process evaluation. (2014). Full Text
Examines patient involvement in collective decisions on the improvement of healthcare and policymaking.
HEALTHY LITERACY AND SAFETY
Aging and Functional Health Literacy: A Systematic Review and Meta-Analysis. (2016). Full Text
Examines the association between age and limited health literacy.
The application of health literacy measurement tools (collective or individual domains) in assessing chronic disease management: a systematic review protocol. (2016). Full Text
A systematic review assessing health literacy measurement tools on health outcomes.
Community-based initiatives improving critical health literacy: a systematic review and meta-synthesis of qualitative evidence. (2017). Full Text
A systematic review on how health literacy of communities can be improved by providing community-based health literacy initiatives aimed at older adults.
A dynamic approach to communication in health literacy education. (2016). Full Text
Examines the role of Self-Determination Theory (SDT) to promote and improve mental and physical health. Providing an analysis of studies that address communication and interaction interventions in health literacy curricula for medical and health care practitioners.
Effects of patient health literacy, patient engagement and a system-level health literacy attribute on patient-reported outcomes: a representative statewide survey. (2014). Full Text
Indicates engaging patients by asking question may be more important to patient knowledge and health behaviors than patients' health literacy skills.
Health literacy, numeracy, and other characteristics associated with hospitalized patients' preferences for involvement in decision making. (2014). Full Text
Examines patients’ preferred involvement in hospital problem-solving and decision-making processes.
The impact of health literacy on desire for participation in healthcare, medical visit communication, and patient reported outcomes among patients with hypertension. (2013). Full Text
Describes how patients' healthy literacy influences their interests in participating in their healthcare.
National indicators of health literacy: ability to understand health information and to engage actively with healthcare providers - a population-based survey among Danish adults. (2014). Full Text
Examined how health information is understood by patients and how they are able to engage with healthcare providers, as well as the association between socio-economic characteristics and health literacy. Provides insight on the feasibility of measuring health literacy.
What role does health literacy play in patients' involvement in medical decision-making? (2017). Full Text
Examines the relationship between self-reported patient involvement and health literacy.