Patient & Family Engagement
Listed here is a selection of the most current and relevant research on engaging patients and families to increase patient safety.
• Institute for Healthcare Improvement. Person- and family-centered care.
• AHRQ, PSNet. Patient safety primer: The role of the patient in safety.
• AHRQ. PSNet. Perspective on safety: Patient engagement and patient safety.
• World Health Organization. Patient involvement.
ARTICLES AND REPORTS
Patient participation: current knowledge and applicability to patient safety (2010). Full text
Reviews the origins of patient participation, discusses the published evidence on its efficacy, and summarizes the factors influencing its implementation.
Partnering with patients and families to design a patient- and family-centered health care system: recommendations and promising practices (2008). Full text
A detailed report providing recommendations on building effective partnerships with patients and families to enhance the quality and safety of health care.
Optimizing patient involvement in quality improvement (2013). Full text
Identifies specific strategies to ensure effective patient involvement.
Hospitalized patients' participation and its impact on quality of care and patient safety (2011). Full text
Examines the extent to which hospitalized patients participate in their care, and the association of patient participation with quality of care and patient safety.
The association of hospital quality ratings with adverse events (2014). Full text
Examines how patient-reported quality is related to adverse events.
Patients' and healthcare workers' perceptions of a patient safety advisory (2011). Full text
Assesses patients' and healthcare workers' attitudes and experiences with a patient safety advisory, to investigate predictors for patients' safety-related behaviors.
Patient involvement in patient safety: Protocol for developing an intervention using patient reports of organisational safety and patient incident reporting (2011). Full text
Developed of two patient safety interventions to promote organisational learning about safety: a patient measure of organisational safety; and a patient incident reporting tool. These are to help the NHS prevent patient safety incidents by learning more about when and why they occur.
Clinical workflow observations to identify opportunities for nurse, physicians and patients to share a patient-centered plan of care (2014). Full text
Describes the value and feasibility of integrating nurse and physician plans of care, into a shared plan of care.
Patient involvement in medication safety in hospital: an exploratory study (2014). Full text
Describes how healthcare professionals and patients desire a higher level of patient involvement with their medication while in hospital.
Relationship continuity: when and why do primary care patients think it is safer? (2014). Full text
An exploration of patients’ understanding of safety in primary care, relating to doctor-patient continuity.
Patient portals and patient engagement: A state of the science review. Full text
Demonstrates that patients' interest and ability to use patient portals is strongly influenced by personal factors such age, ethnicity, education level, health literacy, health status, and role as a caregiver.
Evaluating the PRASE patient safety intervention - a multi-centre, cluster trial with a qualitative process evaluation: study protocol for a randomised controlled trial. Trials. 2014; 15: 420. PMID: 25354689. Full text
Development of the PRASE (Patient Reporting and Action for a Safe Environment) intervention, which gains patient feedback about quality and safety on hospital wards.
Beliefs and experiences can influence patient participation in handover between primary and secondary care--a qualitative study of patient perspectives (2012). Full text
Examines the patients' perspectives about their participation in handovers.
A qualitative exploration of patients' attitudes towards the 'Participate Inform Notice Know' (PINK) patient safety video (2013). Full text
Describes the creation of a patient education video encouraging hospital patients' involvement in safety-relevant behaviours.
HEALTHY LITERACY AND SAFETY
Effects of patient health literacy, patient engagement and a system-level health literacy attribute on patient-reported outcomes: a representative statewide survey (2014). Full text
Indicates engaging patients by asking question may be more important to patient knowledge and health behaviors than patients' health literacy skills.
A proposed 'health literate care model' would constitute a systems approach to improving patients' engagement in care (2013). Full text
Proposes a Health Literature Care Model as an organizational value to improve patients’ engagement in care.
Patient activation and advocacy: which literacy skills matter most? (2011). Full text
Examines whether reading, numeracy, speaking, and listening are associated with patient self-advocacy.
The impact of health literacy on desire for participation in healthcare, medical visit communication, and patient reported outcomes among patients with hypertension (2013). Full text
Describes how patients' healthy literacy influences their interests in participating in their healthcare.
National indicators of health literacy: ability to understand health information and to engage actively with healthcare providers - a population-based survey among Danish adults (2014). Full text
Examined how health information is understood by patients and how they are able to engage with healthcare providers, as well as the association between socio-economic characteristics and health literacy. Provides insight on the feasibility of measuring health literacy.
Health literacy, numeracy, and other characteristics associated with hospitalized patients' preferences for involvement in decision making (2014). Full text
Examines patients’ preferred involvement in hospital problem-solving and decision-making processes.