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Patient & Family Engagement

• Institute for Healthcare Improvement. Person- and family-centered care.

• AHRQ, PSNet. Patient safety primer: The role of the patient in safety.

• AHRQ. PSNet. Perspective on safety: Patient engagement and patient safety.

• World Health Organization. Patient involvement.

The association of hospital quality ratings with adverse events. (2014). Full text

Can patient involvement improve patient safety? A cluster randomised control trial of the Patient Reporting and Action for a Safe Environment (PRASE) intervention. (2017). Full Text

Clinical workflow observations to identify opportunities for nurse, physicians and patients to share a patient-centered plan of care. (2014). Full Text

Evaluating the PRASE patient safety intervention - a multi-centre, cluster trial with a qualitative process evaluation: study protocol for a randomised controlled trial. (2014). Full Text

Involving patients in patient safety programmes: A scoping review and consensus procedure by the LINNEAUS collaboration on patient safety in primary care. (2015). Full Text

Optimizing patient involvement in quality improvement. (2013). Full Text

Patient participation in medication safety during an acute care admission. (2015). Full Text

Patient portals and patient engagement: A state of the science review. (2015). Full Text

Promoting engagement by patients and families to reduce adverse events in acute care settings: a systematic review. (2014). Full Text

Examines interventions that encourage patient and family engagement and how they have been implemented.


The role of patients and their relatives in 'speaking up' about their own safety - a qualitative study of acute illness. (2015). Full Text

This study examined the experiences and views of patients and their relatives to determine the potential for involvement in promoting their own safety.


What are the key ingredients for effective public involvement in health care improvement and policy decisions? A randomized trial process evaluation. (2014). Full Text

Examines patient involvement in collective decisions on the improvement of healthcare and policymaking.

Aging and Functional Health Literacy: A Systematic Review and Meta-Analysis. (2016). Full Text

The application of health literacy measurement tools (collective or individual domains) in assessing chronic disease management: a systematic review protocol. (2016). Full Text

Community-based initiatives improving critical health literacy: a systematic review and meta-synthesis of qualitative evidence. (2017). Full Text

A dynamic approach to communication in health literacy education. (2016). Full Text

Effects of patient health literacy, patient engagement and a system-level health literacy attribute on patient-reported outcomes: a representative statewide survey. (2014). Full Text

Health literacy, numeracy, and other characteristics associated with hospitalized patients' preferences for involvement in decision making. (2014). Full Text

The impact of health literacy on desire for participation in healthcare, medical visit communication, and patient reported outcomes among patients with hypertension. (2013). Full Text

National indicators of health literacy: ability to understand health information and to engage actively with healthcare providers - a population-based survey among Danish adults. (2014). Full Text

What role does health literacy play in patients' involvement in medical decision-making? (2017). Full Text