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Patient & Family Engagement – Advocacy

MIPS Tips on Patient & Family Engagement


The Manitoba Institute for Patient Safety and Prairie Mountain Health present We AdVANCE: a documentary film on patient safety.

Falling Through the Cracks: Greg's Story

In 2019 the Manitoba Institute for Patient Safety, the Max Rady Faculty of Health Sciences, Office of Interprofessional Collaboration and the Winnipeg Regional Health Authority, presented Falling Through the Cracks: Greg’s Story to Manitoba’s healthcare communities and the public.  Presented as both an awareness and learning opportunity, feedback was collected on actionable learnings, which the audience presented, and the key take-away action items are available in this summary document. If you wish to host a screening or view the film as an educational tool, you can find out more on the Greg’s Wings website.


Health literacy is the ability to access, understand, and act on information for health. These resources provide information about health literacy:

• The Canadian Public Health Association’s Examples of Health Literacy in Practice

Centers for Disease Control and Prevention Health Literacy

• World Health Organization’s Health Literacy: The Solid Facts

• Australia’s summaries on health literacy:

o For patients and consumers

o For healthcare providers

Vancouver Coastal Health’s video to help health professionals understand health literacy

“What Did the Doctor Say? Improving Health Literacy to Improve Patient Safety”

Literacy Partners of Manitoba

Health Literacy in Canada: A Healthy Understanding

Health Literacy in the Patient’s Medical Home

Health Literacy Studies at the Harvard School of Public Health

AHRQ Health Literacy Universal Precautions Toolkit

An Inter-Sectoral Approach for Improving Health Literacy for Canadians


The Manitoba Institute for Patient Safety is proud to partner with The Canadian Patient Safety Institute and patients and experts from across Canada to develop a new online Guide to offer patients, patient partners, managers, and leaders, guidance and tools to engage in safer care. Designed to be used in all healthcare settings, the Guide brings together the best evidence experience and leading practices on patient engagement.

Engaging Patients in Patient Safety – A Canadian Guide

Many resources are available to help patients and families navigate the health care system and for patients and families to be involved to make care safer.

Tips and Tools for Talking to Your Healthcare Team (Canada)

A Guide to Having Conversations About What Matters (BC)

Inventory for Caregivers in Manitoba (Manitoba)

Options for Seniors (Manitoba)

Caregiving (Manitoba)

Cancer Patient and Family Support Services (Manitoba)

Choosing Wisely Canada

Evidence to Improve Care, Quality Standards (Ontario)

Patient Engagement Resource Hub (Canada)

Recalls and Safety Alerts (Health Canada)

MedEffect Canada is a free service to stay informed of advisories, warnings and recalls for health products that Canadians use every day.

International Alliance of Patients’ Organizations  (International)

Be More Involved in Your Health Care (US, AHRQ)

Joint Commission’s Speak Up (US)


The following patient-led programs are committed to bringing the perspectives of patients and families to healthcare organizations to advance safe healthcare:

Patients for Patient Safety Canada

Patients Canada

Consumers Advancing Patient Safety (US)



Patient and family-centred care can improve patient safety and quality of care. Many organizations provide resources on how to partner with patients:

Engaging Patients in Patient Safety – A Canadian Guide

What Matters to You? And A Guide to Having Conversations that Matter (BC)

Always Use Teach Back! (IHI, US)

Patient Engagement Heard and Valued (Workbook, BC)

Engaging with Patients and Caregivers about Quality Improvement (Ontario)

Toolkit for Engaging Patients and Families at the Planning Table (Alberta)

Institute for Patient and Family-Centered Care (US)

Patient Engagement: Catalyzing Improvement and Innovation in Healthcare (Book, Canada)

Person- and Family-Centered Care (IHI, US)

Engaging Patients and Families in Their Health Care (AHRQ, US)

Patient Engagement and Safety (AHRQ, US)

Guide to Patient and Family Engagement in Hospital Quality and Safety (AHRQ, US)

Led by the Institute for Healthcare Improvement (IHI), Always Events® are aspects of the patient experience that are so important to patients, their care partners, and service users that health care providers must aim to perform them consistently for every individual, every time. For more information on Always Events:

• Video: What is an Always Event

Always Events Toolkit

A Focus on Always Events

Never Events are patient safety incidents that result in serious patient harm or death, and are preventable using organizational checks and balances. Many patient safety and healthcare organizations around the world have developed interventions to target Never Events, including:

• Canadian Patient Safety Institute, Never Events for Hospital Care in Canada

• NHS Improvement, Never Events Policy and Framework (UK)

• AHRQ Patient Safety Network, Never Events (US)

• National Quality Forum, Serious Reportable Events (US)

See also Research on Patient and Family Engagement.

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