Patient & Family Engagement
Listed here is a selection of the most current and relevant research on engaging patients and families to increase patient safety.
• Institute for Healthcare Improvement. Person- and family-centered care.
• AHRQ, PSNet. Patient safety primer: Patient engagement and patient safety.
• World Health Organization. Patient engagement.
ARTICLES AND REPORTS
Patient education on infection control: A systematic review. (2020). Full Text
This study identifies literature that assesses hospitalized patients' education on IC measures.
Patient portals facilitating engagement with inpatient electronic medical records: a systematic review. (2019) Full Text
Examines the use of patient portals that provide access to electronic medical records and their role in patient engagement.
Advancing patient engagement: youth and family participation in health research communities of practice. (2018) Full Text
Looks at the involvement of patients as co-researchers and more than just a participant.
Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research. (2018) Full Text
This is a scoping review to identify methods and outcomes of patient engagement in health research.
Structured approaches to promote patient and family engagement in treatment in acute care hospital settings protocol for a systematic scoping review. (2018) Full Text
The review identifies and classifies approaches in acute care hospitals to engage patient and families in treatment according to the behavior change technique taxonomy; and evaluates and synthesizes the outcomes for these approaches for patients and families, healthcare providers, and health administrators/funders.
Bringing value-based perspective to care: including patient and family members in decision-making processes. (2017) Full Text
This article discusses a strategy for system-level implementation of including patients and families in primary healthcare decision-making.
Can patient involvement improve patient safety? A cluster randomised control trial of the Patient Reporting and Action for a Safe Environment (PRASE) intervention. (2017) Full Text
Evaluates the efficacy of the Patient Reporting and Action for a Safe Environment intervention.
Strategies and impacts of patient and family engagement in collaborative mental healthcare: protocol for a systematic and realist review. (2016) Full Text
This article aims to describe strategies used to engage people with depression or anxiety disorders and their families in CMHC and understand how these strategies work.
Involving patients in patient safety programmes: A scoping review and consensus procedure by the LINNEAUS collaboration on patient safety in primary care. (2015) Full Text
A review of interventions focussing on patient involvement for patient safety.
Patient portals and patient engagement: A state of the science review. (2015) Full Text
Demonstrates that patients' interest and ability to use patient portals is strongly influenced by personal factors such age, ethnicity, education level, health literacy, health status, and role as a caregiver.
HEALTHY LITERACY AND SAFETY
Development and validation of a short and easy-to-use instrument for measuring health literacy: the Health Literacy Instrument for Adults (HELIA). (2020). Full Text
This study aimed to develop and psychometrically evaluate an instrument for measuring health literacy among adults (the Health Literacy Instrument for Adults - HELIA).
Beyond reading and understanding: health literacy as the capacity to act. (2018) Full Text
This study examines the impact of health literacy on healthcare outcomes.
Evidence on the effectiveness of health literacy interventions in the EU: a systematic review. (2018) Full Text
This systematic review looks a the effectiveness of health literacy interventions in the European Union.
Organizational health literacy: review of theories, frameworks, guides, and implementation issues. (2018) Full Text
This study reviews theories and frameworks of organizational health literacy, their effectiveness, and barriers to implementing.
Community-based initiatives improving critical health literacy: a systematic review and meta-synthesis of qualitative evidence. (2017) Full Text
A systematic review on how health literacy of communities can be improved by providing community-based health literacy initiatives aimed at older adults.
What role does health literacy play in patients' involvement in medical decision-making? (2017) Full Text
Examines the relationship between self-reported patient involvement and health literacy.
Aging and Functional Health Literacy: A Systematic Review and Meta-Analysis. (2016) Full Text
Examines the association between age and limited health literacy.
The application of health literacy measurement tools (collective or individual domains) in assessing chronic disease management: a systematic review protocol. (2016) Full Text
A systematic review assessing health literacy measurement tools on health outcomes.
A dynamic approach to communication in health literacy education. (2016) Full Text
Examines the role of Self-Determination Theory (SDT) to promote and improve mental and physical health. Providing an analysis of studies that address communication and interaction interventions in health literacy curricula for medical and health care practitioners.
by the Manitoba
Institute for Patient Safety
will be identified with